Tuesday, February 28, 2006

How to cope with 15 years of abandonment by the publicly funded Paediatric Oncology Follow up Program that was down the hall the whole time

I like lists. In chronologically descending order:
  1. engage in some soft alcoholism (meaning: if you lean toward hard liquor, make it something fruity)
  2. denial
  3. submit to their ridiculous and continual insistences that you're fine, there's nothing wrong with you, and if there is, well it's probably 'psychiatric' and no concern of theirs, because it wouldn't do anything for their fundraising initiatives given that you're not bald anymore (Mar 1, 2006 correction: I'm in the adult system: Fundraising? What fundraising?)
  4. give the psychiatric route a shot, and while you're there, get the full-on psych experience of having your life ruined for years in a plethora of demented ways. to get the authentically fucked up experience, your care must be delivered in either a) a soft spoken tone of voice or b) a stern (but fatherly) tone of voice. nod, listen, then drink in the infantilization of your 'self'.
  5. completely dissociate yourself from bodily sensations, so that you can cope with the whale-swallowing psychic suffering by living in a self-induced stasis, and then try to pretend like you're not stumbling around this earth in abject confusion&revulsion and bouncing off other people like they're the personification of a perfectly made bed. [that's right - for me leaving my house feels as it would for you to leap into the pages of Martha Stewart Living.]
  6. reconnect with said abandoned bodily sensations, and enjoy the freaky experience for as long as humanly possible
  7. read A Heart Breaking Work of Staggering Genius, and then follow that with a carefully selected diet of McSweeney's, in order to better develop your inherent (but almost lost) sardonic sense of humour
  8. hire a fucking good lawyer
  9. hope that someday you'll be able to read McSweeney's longer than 30 seconds at a go
  10. cut yourself slack as often as required
  11. schedule regular times to sadly shake your head at the ignorance of healthy people who mean well, but don't know what the fuck they're talking about
  12. read good books that have useful info, like After Cancer by Wendy Schlessel Harpham
  13. kiss your cat
  14. grieve often and large those chunks of time spent being hopelessly naive

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